Home » Poetry » Lyrics for dementia and a poem for autism

Lyrics for dementia and a poem for autism

Here are the song lyrics I mentioned in the post I wrote yesterday, the ones which are included in the ‘autobiography’ of a man I met at an Alzheimer’s Society memory cafe. The song is one of 3 on a CD I have recorded to raise awareness of dementia as well as funds for the Alzheimer’s Society.

I have also included a poem I wrote for publication in The Mortal Man, a book of poetry inspired by a young autistic man who lost his life at the age of 19. Details of the book, being sold in aid of the National Autistic Society, are here http://www.lulu.com/gb/en/shop/jae-alexander-linsey/the-mortal-man/paperback/product-21004984.html  The poem was written with the help of disabled adults in the Skills for Life Performing Arts Group, Wolverhampton which I used to run until we lost our funding.

Thanks for reading.


I hope you’ll listen to me

I want to tell you what I’ve lost
I hope you’ll listen to me
I want to help you understand
why I cannot be free

I struggle to do the simplest thing
I’ve done a thousand times before
like opening a can of beans!
I feel confused and insecure.

I’ve lost the skills I used to have,
I lose my way, forget my name,
lack independence, confidence,
I feel embarrassed and ashamed

I want to tell you how it feels
I hope you’ll listen to me
I want to help you understand
why I cannot be free

I’m isolated, agitated,
muddled and exasperated,
scared to speak in case I’m wrong,
stigmatised, humiliated

All because of this disease
which any one of us could get,
a tangling up which kills the brain
slowly, surely, bit by bit.

I want to tell you how to help
I hope you’ll listen to me
I want to help you understand
why I cannot be free

Please don’t treat me like a child
or tell me what to do and say,
I’m not stupid, I do my best,
dementia doesn’t go away.

Please have patience, please be friendly,
show me that you understand,
treat me as you would be treated,
if I falter, hold my hand.

I want to tell you about the people
who help me to feel free,
friends and family, those I meet
who empathise with me

Those who help me every day,
welcome me and care for me,
cope with me without complaining,
help me to live normally

or near to normal as I can,
who talk to me and make me smile,
people living with dementia,
my dementia, all the while.

Those who listen with affection
as I struggle with my words
try to understand my message,
making sure that I am heard.

© Heather Wastie
April 2014


Autistic Spectrum

Draw an imaginary line
from the North Star
to the ground

Walk along the line
your routine
never changing
cut and dried

The star is fixed
the straight line
your boundary
a spectrum of blocks

Only the strongest
defy the magnetic pull
turn the line by 90 degrees
so it becomes

a bar to be raised
a barrier to be opened
a frontier to be crossed

© Heather Wastie
January 2013

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